30 Apr 2012
The last couple of days have been good. Jim is still home so we have enjoyed that. Chris has been doing good. Some head pains but not too bad and short lived. He hasn't had any confusion to speak of either. Happy Happy!!!! Yesterday, we went and got Mom and went to a greek restaurant for some authentic greek food which was delicious! We all ate like pigs and had a great day. They gave us so much food that we all had plenty of leftovers to take home. Yummy lamb and cucumber sauce. :) Mom was in pretty good spirits yesterday too which was nice. It didn't start out that way when I called her but she was happy when I told her to be ready to go and we'd be there in a 1/2 hr. I think she likes being at home by herself but she does get lonely so I guess I need to give her alittle bit more attention. It's difficult because I am doing about all I can do but I will try. Things are going good overall and I am grateful for that. I also know that things can change in an instant so I appreciate the good times when I get them. I think we are going to get out again today and take Chris somewhere. He does better if we take him out and he gets more mental stimulation than just sitting at home watching tv which is what he wants to do all the time. I have noticed something strange; he doesn't like the shows and movies that he use to just love. I dvr Dukes Of Hazzard for him and he doesn't care about watching them. For all you people that know Chris, you KNOW he has always loved the Dukes Of Hazzard.  He still loves Home Alone and watches it all the time but he doesn't care about alot of the old movies he loved so much like Shrek, Bedtime Stories, etc. It is weird how his likes and dislikes have changed. I suppose this has to do with alzheimers but who knows.

27 Apr 2012
A nice relaxing day. Did laundry, washed dishes, watched movies with Jim and Chris. Now Jim went on to bed, I tucked Chris into bed after he watched Andy Griffith and I am all alone watching tv, blogging and drinking a good glass of wine. This is my time; when I can reflect on the day and have my quiet time to myself. Chris did really well today; no head pains to speak of and he has been happy and cheerful all day. Tomorrow night we are going to the drive-in to see The Lorax. Chris will like that. He already has decided what snacks he wants to take with him. I think the 40mg Topamax might be starting to help with his head pains. :) Right now at this moment, everything is good, happy, peaceful and am looking forward to a great day tomorrow. Goodnight all!

25 Apr 2012
Another wednesday about over with, thank you Lord. Wednesdays are so stressful. Chris did pretty good today but when we got to the restaurant, he had trouble walking and hurt to the point of crying. Thankfully, it got better and he was able to walk in and eat. His head hurt some while we were eating but he was able to finish his food. I hope the Topamax works for him. He only had one head pain today so that's improvement. Mom was walking good until Chris started hurting and then she started walking slow and acting like she was in pain. Jim was with us and he even noticed how she acted; she just couldn't stand Chris getting attention more than her. I must continue to remember that she's old and this is so typical of how she has always been. I've got to make the appointment with the lawyer to get guardianship of Chris because he will never be with her again and she doesn't even want to go to his doctor appointments with us. Ofcourse, it has now reached the point where I need to do everything for her regarding her doctor appointments, medication, and care so it's just as well. I take care of all of Chris' needs and have for a long time but she will not let go of guardianship of him. It will change though because it has to. As I have said before, weird family dynamics for us and it always has been. Oh well, for now I have limited guardianship and I will do whatever I have to do for my brother no matter whether she likes it or not. It's not about my Mom; it's about Chris and what's best for him. He comes before my Mom and that's just how it is. If she doesn't like that, then too bad. You see why I say wednesdays are stressful? They definitely put me in a bad frame of mind. Andy Griffith is coming on and Chris is eating ice cream. That's happiness right there. Goodnight!

23 Apr 2012
Sunday was an okay day. The food turned out good and we all ate alot. Mom said she was out of her insulin. I check all her medications and I don't know what she did with it but she didn't even have 10 units to take for the next morning and she takes 20 units every morning. So; off we all went to Wal Mart, 20 miles away to get her insulin. I made her get 2 vials. We got her groceries as well. Poor Chris didn't fair well and Jim stayed right by him while I took Mom around the store. She didn't even seem concerned about Chris having head pains and not feeling good. Anyway, got that done, got Mom and all her groceries home, and then Jim, Chris and I went home. Whew! Was glad for that day to be over. Today, Chris had an appt. with the neurologist and he has now put Chris on Topamax for seizures and headaches. I pray to God that this will help and ease Chris' severe head pains. I called Mom to tell her what the doctor said and she talked about all different kind of things and didn't ask about Chris. I'm not surprised but it still hurts. It is what it is. Chris is tucked into bed, and happy and safe with us. Jim got Chris a bowl of ice cream right before bed and boy did Chris love that. Chris is content with us and happy. I love Chris so much.

21 Apr 2012
Fairly good day. It was so cold today. A cold gray dreary day and we all just watched movies and laid around. Chris ate good and only had one "brain freeze" today and it only lasted for a minute or two. He did get alittle confused tonight and thought we had left him again. I guess because Jim and I were in the other room and had paused the tv. He can see the tv from his room so maybe it confused him to just see the directv box bouncing all over the screen. We also talked to Mom tonight and she wasn't in a good mood so that could have had something to do with Chris' confusion. Tomorrow we are going to Moms for dinner. Jim and I are fixing beans & ham, cornbread, sweet potatoes, and fruit salad. Should be a nice time. "Should" is the operative word here. I hope Mom is in a better mood tomorrow and feeling good because I think it makes a big difference with Chris. He is so sensitive and worries about everyone and I don't want him to worry. I want everything to be calm and good for Chris. He doesn't need drama or problems dumped up on him.

20 Apr 2012
Not a great day. Chris woke up with his head pains and they have been happening on and off all day. Talked to the neurologist and Chris has an appointment Mon at 2:30. I hope something can be done about it. Chris was really in pain today. Poor kid. We ran our errands and Chris, Jim and I ate at Subway. Chris couldn't even eat his food because the pain started up again. We didn't go to the bluegrass festival tonight but will try and go tomorrow if Chris feels up to it. Chris was feeling alittle better tonight and watched Home Alone. He has seen it a million times and loves it. Jim and I could hear him in his room laughing and laughing and talking right along with the movie. He knows everything about it and knows it word for word. It was so great to hear him laughing so much. I just tucked him in bed and he told me that he loved how I took care of him and his other sister spoils him rotten too. I told him there was only one sister, me. He kind of frowned and then said oh okay. I don't know if that is the right thing to do or not correcting him on that. I guess I've just got to follow my gut and for now I think I should try to be as honest as possible and keep him in reality. I'm sure it will reach a stage where I just agree with him and smile. I am praying that tomorrow will be a much better day and that Chris won't be in so much pain.

19 Apr 2012
I tucked Chris in bed; our usual routine. Andy Griffith goes off, I give him his medicine, tuck him in, kiss him and tell him "Don't ever forget how much you're loved". He looks at a picture of me and him, taken about 20 yrs ago, and tells me how much he loves that picture of him and his sister and then wants me to tell him who I am. I asked him "Who am I?" Chris said "Can you help me?" I finally had to tell him and he hugged me and said "I'm so glad to see you!" Great day ends in sadness. My comment to everyone would be to not take anything for granted in life. One second is fine, the next is not. Going to bed sad.