27 Jan 2013
It's getting to where I can't seem to find time to write in my blog. The days get shorter and more filled with something going on. There just aren't enough hours in the day. At times I feel like I'm fighting a losing battle. Chris is about the same; some days really good some days not. A few days ago I got up to check on him as usual (about 6am). I could hear him making a strange noise like a cry and I thought he was having a bad dream. I didn't see him in his bed and I thought he must be sitting up in bed since he does that alot. I walked further down the hall to see what he was doing and I see that he is lying on the floor. He had fallen out of bed. I have no idea how long he had laid there but he was wet and his pjs felt ice cold. He had hit the back of his neck and he had a bruise on his upper arm. I had to go wake Jim up to help me get Chris up out of the floor. I had Chris lie back down for alittle. I them got his breakfast ready and got Chris up out of bed and while I'm changing him and dressing him he falls again and hits his head and fell right on his back. He has bruises across his back. I took him to the doctor and he checked him over and looked really close for any head injury or problem. Chris has actually been fine since then. I don't know why he fell out of bed but he does move around alot now in bed. Lots of tossing and turning. I suppose he just rolled out. I feel terrible that he fell again right in front of me. My poor baby. It is just another change to deal with. If Chris isn't able to stand while I change him and out his pads on him I'm going to have to get different pads and change him like a baby. It is a very difficult situation. To top things off, I have that lovely stomach virus. I got so sick friday evening and I have never thrown up so hard in my life. It's sunday evening now and I am feeling better now but am so weak. I've been able to change Chris, clean him up and Jim has been fixing him his meals. Sweet Chris saw me throwing up and is so worried about me. He has the most tender heart of anyone I've ever known. He keeps wanting to hug me and kiss me. I told him that he can't because I don't want him to get sick. He understands but doesn't understand. He says he wants to hug me so I'll feel better. I told him when I got better he could hug and kiss me all he wanted because I sure love his kisses and hugs. I am praying that Chris and Jim do not get it. Chris might end up in the hospital if he got it.

13 Jan 2013
Seems like it's been forever since writing in my blog. Christmas went great. We had a great time at Jim's Moms house on Christmas eve with the family. Chris dressed up as Santa again this year and handed out candycanes. Everyone was so kind to him and sweet. Christmas morning Chris saw that Santa had been here. He had left cookies and eggnog out for Santa. We had a nice breakfast, openned gifts and then later in the day went to Moms. It was really nice at Moms too and we all had fun. Chris did really well. The next morning I went to the doctor for my allergy shot and then we headed to West Virginia for a week. Chris did pretty good on the trip but would get really tired each day. It was cold snowy and slick at times. He really hated the snow. We thought he might like it since we grew up with lots of snow but he didn't. He is very concerned with the sun now and always ask me if it's going to be sunny. Each day he would talk about the sun coming out. No such luck with all the snow and sleet. On the last day as we were heading out the sun came out. Chris was very happy. He had trouble with riding long amounts of time. When Chris would get really tired he would lean and a couple times his head was completely resting on his shoulder. It really worried me. After a good nights rest, he was fine the next morning. He did choke on our last night in the hotel room. He spit the chicken nugget out and was okay. Note to self: no more chicken nuggets. We had a wonderful time in WV and got to see everyone but we were all so glad to get back home. Chris had his doctor appt with our family doctor and I mentioned physical therapy to strengthen Chris' muscles so we can keep him from ending up in a wheelchair. the doctor said that medicare wouldn't cover it due to him having Down Syndrome and Alzheimers. That's like being discriminated againist him because of his disability. I don't understand how they can be so cold. I'm not giving up on it though. I'm going to check with the neurologist and see what he says. I really like and respect our family doctor but I'm going to do whatever I have to do for Chris. It's all about him. Chris is still declining at a fairly quick rate but he has moments that are so clear and insightful. He told me last night as we were watching a movie that he sure wished that Jesus would heal him. Breaks my heart to see him so worried or concerned. He shouldn't be worried about anything. He should have carefree days of fun and laughter. I've got to go tuck him into bed now. We have a full day tomorrow with lots to do.