Wednesday, October 31, 2012
31 Oct 2012
Happy Halloween! The party was alot of fun at my sister in laws. Jim couldn't make it; he was stuck in traffic in KY because of a HazMat spill on the highway so Chris and I went on by ourselves. The costumes were a hit. Chris looked so good and he really got the attention :) I'm the one with the pink wig and my sister in law Carol is the witch. We then spent the night with my mother in law because I didn't feel like driving 2 hours back home. We really had fun and I miss all of them so much. I don't get to see them that often so Chris and I are going back in a week or so and spend the night with Mary, my mother in law, again. She is so kind and sweet to Chris. She really loves him and he is crazy about her too. We are still doing our daily drives. Chris calls them field trips. Today we went to the post office and rode around alittle. Met Jim for a late lunch and Chris liked that. Tomorrow we are going to the store to get Mom groceries. Chris is not standing straight upright anymore. He leans over alot. I told him yesterday to try standing straight and tall and when he did his face went kind of white and he said his back hurt. I asked him where and he pointed to his lower back. Then he said he needed to sit down, he couldn't stand any longer. Another thing to watch with him. I don't know if he hurt his back, his back is weak from lying in bed alot or sitting in bed watching tv or if it has to do with his muscles weakening due to alzheimers. If it bothers him or his standing or walking gets worse, I will ask the doctor. I guess they could do xrays but then what? I very much doubt they would do surgery since going under anesthesia is somewhat of a risk for someone with Downs and also the alzheimers plays a part in that. My appointment at the allergist was interesting and informative. The doctor believes it was fire ants that stung me, not a spider bite. So, I go back for allergy tests on all venom insects. At least I feel really good now and am not so worried about getting bit or stung again. We do have fire ants on our property (they are everywhere around the state) so we have to watch out and see about getting rid of them. I worry about Chris too because he probably wouldn't pay alot of attention to ants or something like that around him. Am posting other halloween pictures from the party. One is of our nephews girlfriend dressed as a cowgirl. Chris really took a liking to her and she was so sweet and attentive to him. We are blessed to have such great family and friends in our life that are so kind and caring.
Friday, October 26, 2012
26 Oct 2012
It's been quite a while since posting anything. Have just been really busy. Last weekend Jim, Chris, Mom and I took a weekend trip to the Smoky Mountains and over into NC. It was absolutely beautiful. The colors were breathtaking. I think Mom really enjoyed it. She had never been to eastern TN and NC. Chris had a good time too and evidently really enjoyed riding around because he has asked me every day since then if we can take a ride. Unfortunately, when we got home I got bit by something (I think a spider) and went into anaphylaxis. Jim and Chris rushed me to the emergency room and they took good care of me. If I hadn't gone I would be dead. Monday I go to an allergist and get to have the fun fun allergy tests done. It's important to find out what I am allergic to now. I have always been allergic to alot of stuff and had allergy tests done years ago but things can change so will be good to know what I'm dealing with. I now carry an epipen with me at all times now. Chris was so sweet during all of this. He was sitting in the ER room with me and he kept looking at me and asking me if I was going to be ok. Then he would ask me if I was still kicking. I would lift my foot up alittle and give him the thumbs up. I couldn't talk very well and I would try to smile but it was hard to do. My face was completely swollen and my lips were huge. Would have been a really scary halloween costume. The amazing thing is that since then Chris has been so clearminded. Every day he has been very alert and talkative and wants to go places so off we go. Sometimes it's just into town but he is happy. Tomorrow we are going to Jims sisters halloween party. Chris is going as a scary clown. He will be dressed to the hilt. I am going as a streetwalker and Jim is going as Romney. Should be a great time. Chris is super excited about the party. He talks about it nonstop. I hope he has a great time. I'm sure he will. We always have so much fun with Jims family. They all love Chris so much and treat him so special.
It's been quite a while since posting anything. Have just been really busy. Last weekend Jim, Chris, Mom and I took a weekend trip to the Smoky Mountains and over into NC. It was absolutely beautiful. The colors were breathtaking. I think Mom really enjoyed it. She had never been to eastern TN and NC. Chris had a good time too and evidently really enjoyed riding around because he has asked me every day since then if we can take a ride. Unfortunately, when we got home I got bit by something (I think a spider) and went into anaphylaxis. Jim and Chris rushed me to the emergency room and they took good care of me. If I hadn't gone I would be dead. Monday I go to an allergist and get to have the fun fun allergy tests done. It's important to find out what I am allergic to now. I have always been allergic to alot of stuff and had allergy tests done years ago but things can change so will be good to know what I'm dealing with. I now carry an epipen with me at all times now. Chris was so sweet during all of this. He was sitting in the ER room with me and he kept looking at me and asking me if I was going to be ok. Then he would ask me if I was still kicking. I would lift my foot up alittle and give him the thumbs up. I couldn't talk very well and I would try to smile but it was hard to do. My face was completely swollen and my lips were huge. Would have been a really scary halloween costume. The amazing thing is that since then Chris has been so clearminded. Every day he has been very alert and talkative and wants to go places so off we go. Sometimes it's just into town but he is happy. Tomorrow we are going to Jims sisters halloween party. Chris is going as a scary clown. He will be dressed to the hilt. I am going as a streetwalker and Jim is going as Romney. Should be a great time. Chris is super excited about the party. He talks about it nonstop. I hope he has a great time. I'm sure he will. We always have so much fun with Jims family. They all love Chris so much and treat him so special.
Thursday, October 4, 2012
4 Oct 2012
Well, this past monday I took Chris to the neurologist for his checkup. He is now on 100mg of Topamax longterm because of his seizures now. The doctor once again reminded me that Chris will not get better, he will get worse. I understand that they have to keep people in a reality check and prepare the family but I wanted to scream out "I $%@&! KNOW AND I DON'T NEED TO BE CONSTANTLY REMINDED!!!!!!!" It was a sad day and I wanted to cry all day. Just sad. Chris was in his fog most of the day. I had to feed him at the restaurant because he was shaking so much. Overall, he did pretty good though. Tuesday we had to take Mom to her appt. and once again Chris was in his fog. While we are sitting in the waiting room all of a sudden Chris looks at me and smiles real big and says "I know you!" I said you do? Who am I? He said "You are my sweet sister!" The clouds lifted, the angels sang and my heart soared. He was just beaming and said he was so happy he was going to cry. He kept on hugging me and kissing me. I told him don't cry because then I will cry too. A little old lady in the waiting room said she was ready to cry too. Every person in that room was touched by Chris. They were all commenting about how sweet he was. This is why Chris is still here. He brings joy to all. He moved everyone that day and it didn't end. We went to the restaurant across the street for lunch and even though Chris was slipping back into his fog, the waitress and employees there were so kind to him and even fixed him an extra special bowl of ice cream. Chris brings peace and love and joy everywhere he goes. He makes people happy and the world needs people like him. I am so very proud to be his sister and am blessed that God chose me to be his sister. Sad days but Chris' love see's us through.
Well, this past monday I took Chris to the neurologist for his checkup. He is now on 100mg of Topamax longterm because of his seizures now. The doctor once again reminded me that Chris will not get better, he will get worse. I understand that they have to keep people in a reality check and prepare the family but I wanted to scream out "I $%@&! KNOW AND I DON'T NEED TO BE CONSTANTLY REMINDED!!!!!!!" It was a sad day and I wanted to cry all day. Just sad. Chris was in his fog most of the day. I had to feed him at the restaurant because he was shaking so much. Overall, he did pretty good though. Tuesday we had to take Mom to her appt. and once again Chris was in his fog. While we are sitting in the waiting room all of a sudden Chris looks at me and smiles real big and says "I know you!" I said you do? Who am I? He said "You are my sweet sister!" The clouds lifted, the angels sang and my heart soared. He was just beaming and said he was so happy he was going to cry. He kept on hugging me and kissing me. I told him don't cry because then I will cry too. A little old lady in the waiting room said she was ready to cry too. Every person in that room was touched by Chris. They were all commenting about how sweet he was. This is why Chris is still here. He brings joy to all. He moved everyone that day and it didn't end. We went to the restaurant across the street for lunch and even though Chris was slipping back into his fog, the waitress and employees there were so kind to him and even fixed him an extra special bowl of ice cream. Chris brings peace and love and joy everywhere he goes. He makes people happy and the world needs people like him. I am so very proud to be his sister and am blessed that God chose me to be his sister. Sad days but Chris' love see's us through.
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